{"id":1271,"date":"2024-09-03T11:28:19","date_gmt":"2024-09-03T09:28:19","guid":{"rendered":"https:\/\/mockup.c2cdigitale.com\/site_demo\/?page_id=1271"},"modified":"2024-10-25T10:17:23","modified_gmt":"2024-10-25T08:17:23","slug":"amvf-asso-partenaires","status":"publish","type":"page","link":"https:\/\/mockup.c2cdigitale.com\/site_demo\/amvf-asso-partenaires\/","title":{"rendered":"amvf.asso | Partenaires"},"content":{"rendered":"

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Nos<\/span> partenaires<\/span><\/h1>\n

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Nous ne sommes pas seuls<\/p>\n

[\/et_pb_text][et_pb_text _builder_version=\u00a0\u00bb4.27.0″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_text_color=\u00a0\u00bb#000000″ text_font_size=\u00a0\u00bb18px\u00a0\u00bb text_font_size_tablet=\u00a0\u00bb18px\u00a0\u00bb text_font_size_phone=\u00a0\u00bb18px\u00a0\u00bb text_font_size_last_edited=\u00a0\u00bbon|desktop\u00a0\u00bb text_orientation_tablet=\u00a0\u00bb\u00a0\u00bb text_orientation_phone=\u00a0\u00bbcenter\u00a0\u00bb text_orientation_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1″ _builder_version=\u00a0\u00bb4.27.0″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb3px|||||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row column_structure=\u00a0\u00bb3_5,2_5″ _builder_version=\u00a0\u00bb4.27.0″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb3_5″ _builder_version=\u00a0\u00bb4.27.0″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.0″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_font=\u00a0\u00bbFigtree|600|||||||\u00a0\u00bb text_text_color=\u00a0\u00bb#000000″ text_font_size=\u00a0\u00bb45px\u00a0\u00bb text_line_height=\u00a0\u00bb1em\u00a0\u00bb custom_margin=\u00a0\u00bb-2px||||false|false\u00a0\u00bb text_font_size_tablet=\u00a0\u00bb50px\u00a0\u00bb text_font_size_phone=\u00a0\u00bb40px\u00a0\u00bb text_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb text_orientation_tablet=\u00a0\u00bb\u00a0\u00bb text_orientation_phone=\u00a0\u00bbcenter\u00a0\u00bb text_orientation_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

Le Centre de R\u00e9f\u00e9rence<\/span> de nos maladies<\/p>\n

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\u2022 Le Centre de R\u00e9f\u00e9rence des Maladies des Vaisseaux du Foie<\/p>\n

H\u00f4pital BEAUJON \u00e0 Clichy, r\u00e9gion parisienne
Dans le cadre du Plan Maladies Rares, le Minist\u00e8re de la Sant\u00e9 a accord\u00e9 le label de Centre de R\u00e9f\u00e9rence pour les Maladies Vasculaires du Foie (CRMVF) \u00e0 l\u2019H\u00f4pital BEAUJON d\u00e8s septembre 2005.<\/p>\n

 <\/p>\n

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Le Centre de R\u00e9f\u00e9rence a pour objectif d\u2019am\u00e9liorer la qualit\u00e9 de la prise en charge locale ou r\u00e9gionale, sans compromettre le recueil de donn\u00e9es n\u00e9cessaires \u00e0 l\u2019am\u00e9lioration des connaissances et des pratiques, et ce en favorisant et en \u00e9valuant :
\u2013 l\u2019am\u00e9lioration de l\u2019acc\u00e8s au diagnostic et aux soins,
\u2013 l\u2019am\u00e9lioration de la qualit\u00e9 des soins, de l\u2019information, de l\u2019\u00e9ducation, de la vie sociale des malades et de leur famille,
\u2013 l\u2019am\u00e9lioration de la satisfaction des personnes soign\u00e9es,
\u2013 l\u2019am\u00e9lioration des connaissances et des pratiques.<\/p>\n

Le Centre de r\u00e9f\u00e9rence agit pour une am\u00e9lioration de la prise en charge des patients afin qu\u2019ils puissent \u00eatre soign\u00e9s \u00e0 proximit\u00e9 de leur domicile. D\u00e8s lors que les diff\u00e9rents intervenants du centre de r\u00e9f\u00e9rence ont \u00e9t\u00e9s concert\u00e9s pour poser le diagnostic, effectuer un traitement pouvant n\u00e9cessiter une expertise (notamment en radiologie interventionnelle), clarifier les causes des diff\u00e9rentes maladies vasculaires, et lorsque le suivi du malade peut s\u2019effectuer dans une structure hospitali\u00e8re de proximit\u00e9 en accord avec les m\u00e9decins traitants et les gastro-ent\u00e9rologues r\u00e9f\u00e9rents, le patient est alors pris en charge localement par son m\u00e9decin r\u00e9f\u00e9rent. Bien entendu, le Centre de r\u00e9f\u00e9rence reste \u00e0 disposition des m\u00e9decins traitants et des gastro-ent\u00e9rologues r\u00e9f\u00e9rents pour mettre en place un relais, et r\u00e9pondre \u00e0 leurs demandes. Des guidelines ont \u00e9t\u00e9s \u00e9labor\u00e9s pour faciliter ce type de prise en charge.
Ainsi, en r\u00e9ponse \u00e0 une demande forte des patients, l\u2019hospitalisation au centre de r\u00e9f\u00e9rence, des patients dont le domicile est \u00e9loign\u00e9 de l\u2019h\u00f4pital BEAUJON est la plus courte possible, r\u00e9serv\u00e9e aux difficult\u00e9s diagnostics ou de prise en charge. Par la suite, le suivi est organis\u00e9 en consultation et \/ ou hospitalisation de jour si besoins particuliers. En cas d\u2019urgence, pr\u00e9venir votre h\u00e9patologue mais ne pas h\u00e9siter \u00e0 voir le m\u00e9decin traitant, qui reste le 1er interlocuteur, ou allez directement aux urgences, si vous \u00eates tr\u00e8s inquiets. Les dossiers des patients du centre, mais aussi les demandes d\u2019avis par d\u2019autres centres nationaux sont discut\u00e9es et analys\u00e9es aux r\u00e9unions multidisciplinaires du Centre de r\u00e9f\u00e9rence une fois par semaine. C\u2019est souvent au cours de ces r\u00e9unions que sont discut\u00e9es des d\u00e9cisions de traitement plus ou moins lourds.<\/p>\n

Le Centre de R\u00e9f\u00e9rence travaille en \u00e9troite collaboration avec l\u2019AMVF :
cette collaboration est n\u00e9cessaire pour am\u00e9liorer la prise en charge des patients en leur assurant soutien, information, etc\u2026.<\/p>\n

Elle a lieu sous diff\u00e9rentes formes :<\/p>\n

\u2013 Par site Internet
\u2013 Par r\u00e9ponse aux sollicitations de l\u2019AMVF
\u2013 Par diffusion aupr\u00e8s des malades des brochures de l\u2019AMVF explicitant son r\u00f4le. La pr\u00e9sence de l\u2019association aux manifestations m\u00e9dicales ou param\u00e9dicales est indispensable.<\/p>\n

Enfin, de nombreuses \u00e9tudes et projets d\u2019\u00e9tudes sont suivis par le Centre de r\u00e9f\u00e9rence qui participe activement \u00e0 certaines d\u2019entre elles, que ce soit au niveau national ou international. Elles feront l\u2019objet d\u2019informations sur ce pr\u00e9sent site.<\/p>\n

M\u00e9decins : <\/strong>
Dr Aur\u00e9lie PLESSIER (Responsable du CRMVF), <\/strong>
Pr Pierre Emmanuel RAUTOU, <\/strong>
Dr Audrey PAYANCE<\/strong>
Dr Lucile MOGA<\/strong>
<\/span>Ils assurent une activit\u00e9 m\u00e9dicale, une activit\u00e9 de recherche, et aident \u00e0 la mise en place des guidelines au niveau national et europ\u00e9en<\/p>\n

Infirmi\u00e8re Coordinatrice : Mme Marie SANTIN
Accompagnement des malades en hospitalisation, en consultation, organisation de certains parcours et mise en relation avec diff\u00e9rents interlocuteurs en fonction des besoins (t\u00e9l : 01 40 87 51 60 – privil\u00e9gier le mail marie.santin@aphp.fr<\/a><\/span>,<\/p>\n

Assistante administrative du CRMVF : Mme Val\u00e9rie DE BREMAND
Gestion administrative du centre de r\u00e9f\u00e9rence au niveau national et europ\u00e9en<\/p>\n

Assistantes m\u00e9dico-administratives : Vanessa JUSTINE, Fatima MOHAMED
Secr\u00e9tariat m\u00e9dical des m\u00e9decins<\/p>\n

Attach\u00e9 de Recherche Clinique : M. Kamal ZEKRINI
Assure l\u2019activit\u00e9 de recueil de donn\u00e9es, le suivi des patients inclus dans les protocoles dont le protocole EnVie,<\/p>\n

Attach\u00e9es de Recherche Clinique pour les protocoles de recherche sp\u00e9cifiques : Djalila SEGHIER (Riport, Apis), Yasmine TOUNSI (Lives)<\/p>\n

Clinique des anticoagulants :
Dr Emmanuelle de RAUCOURT
Dr Imen BEN SALA
Dr Catherine TRICHET
Infirmi\u00e8re coordinatrice de la clinique des anticoagulants\u00a0: Clara SQUIBAN MILLOGO<\/p>\n

 <\/p>\n

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Les Sites Constitutifs<\/span> et Centres de Comp\u00e9tences<\/span> des Maladies Vasculaires du Foie<\/p>\n

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Ces Centres ont \u00e9t\u00e9 re-labellis\u00e9s par la DGOS (Direction G\u00e9n\u00e9rale de l\u2019Offre de Soin) en 2023 pour 5 ans en tant qu\u2019experts des Maladies Vasculaires du Foie.
– CHU d\u2019AMIENS (H\u00f4pital Nord) – H\u00e9pato-gastro-ent\u00e9rologie – Pr Eric NGUYEN-KHAC
– CHU d\u2019ANGERS – H\u00e9pato-gastro-ent\u00e9rologie – Pr Fr\u00e9d\u00e9ric OBERTI
– H\u00f4pital AVICENNE (Bobigny) \u2013 H\u00e9patologie \u2013 Pr Jean-Charles NAULT
– CHU de BESANCON (H\u00f4pital Jean Minjoz) \u2013 Service H\u00e9patologie \u2013 Dr Jean-Paul CERVONI
– CHU de BORDEAUX (GN Sud) – H\u00e9pato-gastro-ent\u00e9rologie \u2013 Dr Paul HERBAMESSIERE
– CHU de BREST – H\u00e9pato-gastro-ent\u00e9rologie – Pr Jean-Baptiste NOUSBAUM
– CHU Paul BROUSSE (Villejuif) – Unit\u00e9 h\u00e9patologie – Pr Audrey COILLY
– CHU de CAEN (H\u00f4pital de la C\u00f4te de Nacre) – H\u00e9pato-gastroent\u00e9rologie – Dr Isabelle OLLIVIER-HOURMAND
– CHU de CLERMONT-FERRAND (H\u00f4pital d\u2019Estaing) \u2013 H\u00e9pato-gastro-ent\u00e9rologie – Pr Armand ABERGEL
– H\u00f4pital COCHIN (Paris) – Service d\u2019h\u00e9patologie – Pr Philippe SOGNI
– CHU de DIJON BOURGOGNE – H\u00e9pato-gastro-ent\u00e9rologie – Dr Anne MINELLO
– CHU de GRENOBLE – H\u00e9pato-gastro-ent\u00e9rologie \u2013 Dr Marie-No\u00eblle HILLERET
– CHU de la Guadeloupe (Pointe \u00e0 Pitre) \u2013 H\u00e9pato-gastro-ent\u00e9rologie \u2013 Dr Moana GELU-SIMEON
– CHRU de LILLE (H\u00f4pital Claude Huriez) \u2013 H\u00e9patologie – Dr S\u00e9bastien DHARANCY
– CHU de LIMOGES – H\u00e9pato- Gastro-ent\u00e9rologie – Dr DEBETTE GRATIEN
– CHU de LYON (HCL-GH Est) – H\u00e9pato-gastro-ent\u00e9rologie – Pr J\u00e9r\u00f4me DUMORTIER
– AP HM de MARSEILLE (H\u00f4pital de la Timone) – Service H\u00e9patologie – Pr Ren\u00e9 GEROLAMI
– H\u00f4pital Henry MONDOR (Cr\u00e9teil) \u2013 Gastro-ent\u00e9ro-h\u00e9patologie – Pr Vincent LEROY
– CHU de MONTPELLIER \u2013 Service H\u00e9patologie \u2013 Dr Magdalena MESZAROS
– CHU de NANTES (H\u00f4tel Dieu) – H\u00e9pato-gastro-ent\u00e9rologie – Dr Isabelle ARCHAMBEAUD
– CHU de NICE (H\u00f4pital l\u2019Archet2) \u2013 Gastro-ent\u00e9ro-h\u00e9patologie – Dr Rodolphe ANTY
– CHRU d\u2019ORLEANS – H\u00e9pato-gastro-ent\u00e9rologie \u2013 Dr Damien LABARRIERE
– CHU PITIE SALPETRIERE (Paris) – H\u00e9pato-gastro-ent\u00e9rologie – Pr Dominique THABUT
– CHU de POITIERS – H\u00e9pato-Gastro-ent\u00e9rologie – Pr Christine SILVAIN
– CHU de REIMS \u2013 Gastro-ent\u00e9rologie-h\u00e9patologie – Dr Alexandra HEURGUE-BERLOT
– CHU de RENNES (H\u00f4pital Pontchaillou) – Service des maladies du foie – Dr Pauline HOUSSEL-DEBRY
– CHU de ROUEN – H\u00e9pato-gastro-ent\u00e9rologie – Dr Odile GORIA
– H\u00f4pital SAINT ANTOINE (Paris) \u2013 Gastro-ent\u00e9rologie-h\u00e9patologie – Dr Armelle POUJOL-ROBERT
– H\u00f4pital SAINT LOUIS (Paris) \u2013 Centre d\u2019investigation Clinique – Pr Jean Jacques KILADJIAN
– CHU de STRASBOURG (H\u00f4pital Civil) \u2013 H\u00e9patologie – Pr Fran\u00e7ois HABERSETZER
– CHU de TOULOUSE (H\u00f4pital Purpan) \u2013 Gastro-ent\u00e9rologie-h\u00e9patologie – Pr Christophe BUREAU
– CHRU de TOURS (H\u00f4pital Trousseau) – H\u00e9pato-Gastro-ent\u00e9rologie – Pr Laure ELKRIEF<\/p>\n

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Nous ne sommes pas seuls<\/span><\/p>\n

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www.filfoie.com<\/strong><\/a><\/span><\/p>\n

Fili\u00e8re de sant\u00e9 Maladies Rares du Foie de l\u2019Adulte et de l\u2019Enfant.
Cette fili\u00e8re a \u00e9t\u00e9 constitu\u00e9e afin de regrouper les moyens et de coordonner au niveau national l\u2019expertise relative \u00e0 l\u2019ensemble des maladies rares h\u00e9patiques adultes et p\u00e9diatriques.
L\u2019objectif principal de la fili\u00e8re Filfoie est de d\u00e9velopper et coordonner la mise en place d\u2019actions transversales visant \u00e0 harmoniser et am\u00e9liorer la prise en charge diagnostique, th\u00e9rapeutique, m\u00e9dico-sociale des patients et \u00e0 renforcer les activit\u00e9s de recherche dans le champ des maladies h\u00e9patiques rares.<\/p>\n

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www.afef.asso.fr<\/a><\/strong><\/span><\/p>\n

Association Fran\u00e7aise pour l\u2019Etude du Foie.
L\u2019AFEF est une Association de m\u00e9decins et chercheurs ayant un int\u00e9r\u00eat pour les maladies du foie.
Le but de l\u2019AFEF est de stimuler la recherche sur les maladies du foie, d\u2019\u00e9tablir des r\u00e9f\u00e9rentiels de bonnes pratiques et des recommandations et de les diffuser.<\/p>\n

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A.M.R.<\/strong> www.alliance-maladies-rares.org<\/a><\/strong><\/span>
Cr\u00e9\u00e9e en 2000, l\u2019Alliance maladies rares est n\u00e9e de la volont\u00e9 commune d\u2019une poign\u00e9e d\u2019associations de maladies rares qui prennent conscience de leur isolement.
Chacune d\u2019elles repr\u00e9sentent trop peu de malades pour int\u00e9resser les pouvoirs publics, la m\u00e9decine, la recherche, l\u2019industrie pharmaceutique. En unissant la voix de 240 associations (dont l\u2019AMVF) de personnes atteintes de maladies rares, identifi\u00e9es ou non, l\u2019Alliance maladies rares contribue \u00e0 une meilleure qualit\u00e9 de vie pour toutes les personnes malades en menant des actions d\u2019information, de formation, d\u2019entraide, de revendication et de recherche\u2026<\/p>\n

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EURORDIS<\/strong> www.eurordis.org<\/a><\/strong><\/span>
Eurordis est un regroupement d\u2019associations de malades qui vise \u00e0 am\u00e9liorer la qualit\u00e9 de vie des personnes affect\u00e9es de maladies rares en Europe.<\/p>\n

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ERN Rare liver<\/strong> : R\u00e9seau Europ\u00e9en des maladies rares du foie afin de d\u00e9velopper et coordonner la mise en place d\u2019actions transversales visant \u00e0 harmoniser et am\u00e9liorer la prise en charge diagnostique, th\u00e9rapeutique et m\u00e9dico-sociale des patients
et \u00e0 renforcer les activit\u00e9s de recherche dans le champ des maladies h\u00e9patiques rares au niveau Europ\u00e9en. Le CRMVF fait partie de ce r\u00e9seau europ\u00e9en des maladies h\u00e9patiques.<\/p>\n

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ORPHANET www.orpha.net<\/a><\/span><\/strong>
Orphanet est un serveur d\u2019informations sur les maladies rares et les m\u00e9dicaments orphelins en libre acc\u00e8s pour tous publics. L\u2019objectif d\u2019Orphanet est de concourir \u00e0 l\u2019am\u00e9lioration de la prise en charge et du traitement des maladies rares, qu\u2019elles soient d\u2019origine g\u00e9n\u00e9tique, auto-immune ou infectieuse, qu\u2019il s\u2019agisse de cancers rares ou de maladies sans diagnostics pr\u00e9cis. Orphanet offre des services adapt\u00e9s aux besoins des malades et de leur famille, des professionnels de sant\u00e9 et des chercheurs, des associations et des industriels. Les renseignements sont en fran\u00e7ais, anglais, italien, espagnol, allemand et portugais.<\/p>\n

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S.N.F.G.E. www.snfge.asso.fr<\/a><\/span><\/strong>
Soci\u00e9t\u00e9 Nationale Fran\u00e7aise de Gastroent\u00e9rologie. Similaire \u00e0 l\u2019A.F.E.F. dans le domaine de la gastroent\u00e9rologie en g\u00e9n\u00e9ral (qui comprend l\u2019H\u00e9patologie).<\/p>\n

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EN-Vie<\/strong>
Un consortium constitu\u00e9 pour r\u00e9pondre \u00e0 un appel d\u2019offre de l\u2019Union Europ\u00e9enne. Il s\u2019agit d\u2019un r\u00e9seau de centres de r\u00e9f\u00e9rence europ\u00e9ens pour les maladies vasculaires du foie. Chaque centre de r\u00e9f\u00e9rence national f\u00e9d\u00e8re \u00e0 son tour un r\u00e9seau national (r\u00e9seau de r\u00e9seaux). Son but est de mettre en \u0153uvre une base de donn\u00e9e commune pour une \u00e9tude prospective des nouveaux cas de syndrome de Budd-Chiari et de thrombose de la veine porte; d\u2019animer un site web ; d\u2019\u00e9laborer des recommandations de pratique clinique, et de fournir des informations (\u00e9tay\u00e9es et valid\u00e9es par un comit\u00e9 d\u2019experts internationaux) aux professionnels, aux patients et au public.<\/p>\n

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www.cost.eu\/actions\/CA23146\/<\/span><\/strong><\/a>
COST<\/strong> (Coop\u00e9ration europ\u00e9enne en science et technologie) est un organisme Europ\u00e9en de financement des r\u00e9seaux de recherche et d’innovation. Ses actions contribuent \u00e0 relier les initiatives de recherche \u00e0 travers l’Europe et au-del\u00e0, et permettent aux chercheurs et aux innovateurs de d\u00e9velopper leurs id\u00e9es dans n’importe quel domaine scientifique et technologique en les partageant avec leurs pairs. Les actions COST sont des r\u00e9seaux ascendants d’une dur\u00e9e de quatre ans qui stimulent la recherche, l’innovation et les carri\u00e8res.<\/p>\n

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Les Plateformes d\u2019expertise maladies rares<\/strong>
Les missions des plateformes : am\u00e9liorer la visibilit\u00e9 des centres labellis\u00e9s maladies rares et la connaissance des maladies rares, former et informer les patients, r\u00e9seaux de villes, h\u00f4pitaux et \u00e9tablissements m\u00e9dico-sociaux ; soutenir l’innovation diagnostique, th\u00e9rapeutique et la recherche par un appui logistique ; renforcer les liens entre les centres maladies rares situ\u00e9s sur la plateforme et les associations de patients ; favoriser l’impl\u00e9mentation de la Banque de donn\u00e9es maladies rares (BNDMR) via les applications (Orbis\/BaMaRa) ; faciliter les liens avec le m\u00e9dicosocial au sein des centres maladies rares et des \u00e9tablissements de sant\u00e9 du territoire.
19 Plateformes d\u2019Expertise Maladies Rares (Auvergne Rh\u00f4ne Alpes ; Bourgogne-Franche-Comt\u00e9 ; Bretagne ; Centre-Val-de-Loire ; Grand-Est ; Hauts-de-France ; Limousin Poitou-Charente ; Nice et Corse ; Normandie ; Nouvelle-Aquitaine ; Occitanie Est ; Occitanie Ouest ; Paris Centre ; Paris Est ; Paris Nord ; Paris Saclay ; Paris Sorbonne Universit\u00e9 ; Pays de la Loire ; Provence-Alpes-C\u00f4te d\u2019Azur) et 4 Plateformes de Coordination Maladies Rares Outre-Mer (Guadeloupe ; Guyane ; Martinique ; R\u00e9union-Mayotte)<\/p>\n

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Aidez nous \u00e0 vous aider<\/span><\/p>\n

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Contact<\/h2>\n

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Email<\/h3>\n

contact@amvf.asso.fr<\/span><\/a><\/p>\n

[\/et_pb_text][et_pb_text _builder_version=\u00a0\u00bb4.27.0″ text_font=\u00a0\u00bbTaviraj|600|||||||\u00a0\u00bb text_text_color=\u00a0\u00bb#000000″ text_font_size=\u00a0\u00bb15px\u00a0\u00bb text_line_height=\u00a0\u00bb1.8em\u00a0\u00bb header_3_font=\u00a0\u00bbTaviraj|600|||||||\u00a0\u00bb header_3_text_color=\u00a0\u00bbrgba(0,0,0,0.36)\u00a0\u00bb header_3_font_size=\u00a0\u00bb18px\u00a0\u00bb header_3_line_height=\u00a0\u00bb1.2em\u00a0\u00bb custom_margin=\u00a0\u00bb47px||19px||false|false\u00a0\u00bb custom_margin_tablet=\u00a0\u00bb\u00a0\u00bb custom_margin_phone=\u00a0\u00bb||30px||false|false\u00a0\u00bb custom_margin_last_edited=\u00a0\u00bbon|desktop\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb]<\/p>\n

Adresse<\/h3>\n

AMVF<\/span>
H\u00f4pital Beaujon<\/span>
Service d’H\u00e9patologie<\/strong>
100 boulevard du G\u00e9n\u00e9ral Leclerc<\/span>
92118 Clichy cedex<\/span><\/p>\n

Plan d’acc\u00e8s<\/span><\/a><\/p>\n

[\/et_pb_text][et_pb_text _builder_version=\u00a0\u00bb4.27.0″ text_font=\u00a0\u00bbTaviraj|500|||||||\u00a0\u00bb text_text_color=\u00a0\u00bb#000000″ text_font_size=\u00a0\u00bb13px\u00a0\u00bb text_line_height=\u00a0\u00bb1.8em\u00a0\u00bb header_3_font=\u00a0\u00bbTaviraj|600|||||||\u00a0\u00bb header_3_text_color=\u00a0\u00bbrgba(0,0,0,0.36)\u00a0\u00bb header_3_font_size=\u00a0\u00bb18px\u00a0\u00bb header_3_line_height=\u00a0\u00bb1.2em\u00a0\u00bb custom_margin=\u00a0\u00bb35px||-7px||false|false\u00a0\u00bb custom_margin_tablet=\u00a0\u00bb\u00a0\u00bb custom_margin_phone=\u00a0\u00bb||30px||false|false\u00a0\u00bb custom_margin_last_edited=\u00a0\u00bbon|desktop\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb]A\u00a0noter la mise en place, en compl\u00e9ment de notre adresse mail de correspondantes r\u00e9gionales t\u00e9l\u00e9phoniques dans le but d\u2019aider les patients sur tout le territoire\u00a0; r\u00e9gions actuellement concern\u00e9es\u00a0:
\n. Auvergne Rh\u00f4ne Alpes avec C\u00e9cile (06.77.85.84.12)
\n. Bourgogne Franche Comt\u00e9 avec C\u00e9cile (06.77.85.84.12)
\n. Normandie (ex \u00ab\u00a0Basse-Normandie\u00a0\u00bb) avec Delphine (06.30.23.51.06)
\n. Normandie (ex \u00ab\u00a0Haute Normandie\u00a0\u00bb) avec Liliane (06.09.51.59.72)
\n. Occitanie avec Delphine (06.42.08.98.33)[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"

\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t
\n\t\t\t\t\t
\n\t\t\t\t\"\"\n\t\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>Nos partenairesNous ne sommes pas seulsLe Centre de R\u00e9f\u00e9rence de nos maladies\u2022 Le Centre de R\u00e9f\u00e9rence des Maladies des Vaisseaux du Foie H\u00f4pital BEAUJON \u00e0 Clichy, r\u00e9gion parisienneDans le cadre du Plan Maladies Rares, le Minist\u00e8re de la Sant\u00e9 a accord\u00e9 le label de Centre de R\u00e9f\u00e9rence pour les Maladies Vasculaires du Foie (CRMVF) \u00e0 l\u2019H\u00f4pital BEAUJON d\u00e8s septembre 2005.  Le Centre de R\u00e9f\u00e9rence a pour objectif d\u2019am\u00e9liorer la qualit\u00e9 de la prise en charge locale ou r\u00e9gionale, sans compromettre le recueil de donn\u00e9es n\u00e9cessaires \u00e0 l\u2019am\u00e9lioration des connaissances et des pratiques, et ce en favorisant et en \u00e9valuant :\u2013 l\u2019am\u00e9lioration de l\u2019acc\u00e8s au diagnostic et aux soins,\u2013 l\u2019am\u00e9lioration de la qualit\u00e9 des soins, de l\u2019information, de l\u2019\u00e9ducation, de la vie sociale des malades et de leur famille,\u2013 l\u2019am\u00e9lioration de la satisfaction des personnes soign\u00e9es,\u2013 l\u2019am\u00e9lioration des connaissances et des pratiques. Le Centre de r\u00e9f\u00e9rence agit pour une am\u00e9lioration de la prise en charge des patients afin qu\u2019ils puissent \u00eatre soign\u00e9s \u00e0 proximit\u00e9 de leur domicile. 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